World Children’s Day 2024: “Listen to the Future” Every November 20th, we celebrate the anniversary of the Convention on...
ZB Blog

World Rare Disease Day
By Danielle WilsonIn Advices, blog
World Rare Disease Day – Reflecting on the Collective Efforts On February 29th, 2024, the Zahra Beau Welfare Foundation...

Galactosemia
By Danielle WilsonIn Advices, blog
GALACTOSEMIA What is Galactosemia? Galactosemia is a rare genetic disorder that affects the body’s ability to metabolize the sugargalactose, which...

Glutaric Acidemia Type II Disorder
By Danielle WilsonIn Advices, blog
Other Names Glutaric Acidemia II (GA2, GA II) Glutaric Aciduria Type 2 Multiple Acyl-CoA Dehydrogenase Deficiency (MAD, MADD) Electron Transfer...

Methyl Malonic Acidemia (MMA)
By Danielle WilsonIn blog
Incidence Methylmalonic Acidemia (MMA) is estimated to affect one out of every 50,000 to 100,000 babies born in the United...

Biotinidase Deficiency (BTD)
By Danielle WilsonIn blog
Biotinidase deficiency is an inherited disorder in which the body is unable to recycle the vitamin biotin. If this condition...