World Rare Disease Day – Reflecting on the Collective Efforts On February 29th, 2024, the Zahra Beau Welfare Foundation (ZBWF) and the Health Services Academy (HSA) came together in a remarkable collaboration to celebrate World Rare Disease Day. This joint effort aimed to shed light on the often-overlooked challenges faced by individuals living with...
GALACTOSEMIA What is Galactosemia? Galactosemia is a rare genetic disorder that affects the body’s ability to metabolize the sugargalactose, which is found in milk and dairy products. There are three types of galactosemia:Classic galactosemia, which is the most severe form; Galactokinase deficiency, which is a milder form; and UDP-galactose 4-epimerase deficiency, which is the mildest...
